Jennifer writes “We said goodnight to our beautiful 5 week old but she never woke for her bottle. Luckily we were up and she was blotchy skinned, grey in colour and staring blankly.
She looked so scared and wouldn’t react to anything. We called 999 and she stopped breathing in the ambulance on the way to the hospital. We were terrified. We got transferred to miles away to a paediatrics intensive care unit whilst she fought for her little life. MRI scans showed significant brain damage, we were crushed.
Fast forward 11 months and she’s coming up to her 1st birthday! She has vision and hearing loss, epilepsy, cerebral palsy and she does not yet babble but her smiles light up the room! She’s a very strong girl. We are all so very lucky to have her.”