Remembering your baby

Fiona Paddon and Scott Bramley have raised national awareness of group B Strep and the charity, as well as vital funds in memory of their son, Edward Gili.

Fiona’s and Scott’s, only child, Edward Paddon Bramley died from group B Strep infection in May 2014.

“Edward was cruelly taken from us as a result of contracting group B Strep infection at birth.The first I heard of this lethal infection was just after I woke up from a Caesarean under general anaesthetic.

I was told that my new baby was being cared for in the special care baby unit, fighting for his life.

Had we had ECM tests in place, Edward could be here today for us to see his first steps and hear his first words. We can’t afford to lose any more lives.”

Many parents will find creating memories of their baby helpful – not only at the time, but also in the first few days, weeks, or years to come.

If you want to find a special way of remembering your baby then below are some ideas from others who have found them helpful:

Buy a Baby Loss Awareness pin badge and light a candle on anniversaries and other special days, such as during the Wave of Light on Baby Loss Awareness Day, 15 October.

“I ran the London Marathon in 2017  for the Group B Strep Support. Running 26.2 miles in memory of my perfect little girl Molly, was an amazing experience and was memorable in every way.”

Kirsti Trew completed the 2017 Virgin London Marathon  and described it as one of the greatest achievements of her life. Kirsty writes “I honestly can’t thank GBSS enough for all the support, love and guidance they have given me over the years.”

Or not marking your loss

Don’t feel that you have to do something to remember your baby.  You may feel it will make things worse or it may just not feel right for you.  There are no right or wrong ways to deal with the loss of your baby.