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Read the latest news and views about group B Strep, the activities of the charity Group B Strep Support and its supporters.

Group B Strep Support’s health information achieves certification

Group B Strep Support has proven it is a provider of reliable, high quality health information having achieved certification by The Information Standard, a health and care certification programme supported by NHS England. Following a review of its information production processes, Group B Strep Support met the programme’s certification criteria and will therefore be able to display The Information Standard quality mark on our literature and website. “With so much information available now, it is vital the public be able to differentiate between information that is and isn’t trustworthy. This is why The Information Standard was established, with its easy to spot quality mark, the public just need to check the mark is on the leaflet or website [...]

By | 2017-03-24T17:21:22+00:00 March 24th, 2017|Latest News|0 Comments

UK NSC recommendation on life-saving screening for newborn babies

On Wednesday 22nd March 2017, the UK National Screening Committee recommended that the Government should not introduce routine screening of pregnant women for group B Strep. We are hugely disappointed by this recommendation. Group B Streptococcus (GBS or Strep B) is the UK’s most common cause of life-threatening infection in newborn babies – causing sepsis, meningitis and pneumonia. Group B Strep is carried by around 20-30% of the population and, on average, in the UK: 2 babies a day develop group B Strep infection 1 baby a week dies from group B Strep infection 1 baby a week survives with disability The UK National Screening Committee have published a one-page recommendation statement, an evidence review summary and their last external review. We [...]

By | 2017-03-24T12:28:31+00:00 March 23rd, 2017|Latest News|0 Comments

Tozers Joins Group B Strep Support’s Legal Panel

National charity Group B Strep Support and law firm, Tozers, are delighted to announce their new corporate partnership to raise greater awareness of group B Strep, and provide support to families affected by it. Group B Strep is the most common cause of life-threatening infection in newborn babies, causing meningitis, sepsis or pneumonia in more than 700 babies a year in the UK. On average, two babies a day develop group B Strep infection, and one baby a week dies from group B Strep infection, and another baby is left with life-changing disability. Although home testing kits are available to buy for less than £40, Tozers has been calling for the NHS to make the ‘gold standard’  test available on [...]

By | 2017-03-23T08:18:49+00:00 March 22nd, 2017|Latest News|0 Comments

Strep B Stomp

Strep B Stomp: Sunday 2 July 2017 We're excited to announce we'll be holding a fun run for all the family on Sunday 2nd July along Worthing Seafront, West Sussex. The 3-mile walk/run is all about having fun while raising money to stop group B Strep infection in babies. The run is suitable for the whole family and whether you walk, jog, or run – the 5K distance (3.1 miles) is achievable for all ages and abilities. We will be with you every step of the way with: A Race Number A complimentary T-shirt A fundraising pack full of hints, tips and ideas Register Today

By | 2017-03-20T09:41:17+00:00 March 20th, 2017|Latest News|0 Comments

Irwin Mitchell Joins Group B Strep Support’s Legal Panel

National charity Group B Strep Support and leading law firm, Irwin Mitchell, are delighted to announce their new corporate partnership to raise greater awareness of group B Strep, and provide support to families affected by it. Group B Strep is the most common cause of life-threatening infection in newborn babies, causing meningitis, sepsis or pneumonia in more than 700 babies a year in the UK. On average, two babies a day develop group B Strep infection, one baby a week dies from group B Strep infection and another survives with life-changing disability. Although home testing kits are available to buy for £40, Irwin Mitchell has been backing calls from Group B Strep Support to make the ‘gold standard’  [...]

By | 2017-03-22T12:50:59+00:00 March 7th, 2017|Latest News|0 Comments

Minister for Health responds to change.org/GBS petition

We have now received a formal response to the Change.org petition on GBS that had over 256,000 signatures (now almost 300,000) when handed into the Department of Health in January. We are deeply disappointed by the response. The letter from the Minister for Health, Philip Dunne MP, does not move the issue forward at all. Apart from two sentences, it is made up entirely of standard 'boilerplate' content, seen many times in correspondence from the Department of Health, and simply summarises the current position.   “We are so disappointed by this letter - it may be that the Minister does, as he says: 'fully appreciate the concerns raised by the signatories' but, if so, he has failed to show [...]

By | 2017-03-20T19:50:22+00:00 March 3rd, 2017|Latest News|0 Comments

GBSS Response to UK NSC public consultation on antenatal group B Strep screening

The public consultation on the report that the UK National Screening Committee (UK NSC) commissioned on antenatal screening for group B Strep carriage has now closed. We are now waiting to hear the decision of the UK NSC, taking into account not only the report they commissioned, but also all the comments submitted during the public consultation. We were very disappointed with the report that was commissioned and disagree profoundly with many of the findings and conclusions. The UK NSC review looked at selected evidence published since 2012 and the report recommended against introducing a screening programme. We strongly disagree with this – evidence shows that screening can and does save lives and reduces the risk of long-term disability by preventing devastating [...]

By | 2017-02-16T08:30:05+00:00 February 9th, 2017|Latest News|0 Comments

ITV’s This Morning

Fiona Paddon appeared on ITV's This Morning today to talk about the loss of her baby, Edward, as a result of group B Strep infection and her campaign to prevent the same happening to other Mums. She talked about her change.org/GBS petition and spoke very movingly about what had happened, and her heartbreak. Philip Schofield and Holly Willoughby were clearly shocked that not only are pregnant women not told about group B Strep, but also that such a simple test for group B Strep carriage - the ECM test - is not available on the NHS. Dr Chris Steele provided all the key information, including how other countries routinely test pregnant women. There was just time for Dr Chris to explain that [...]

By | 2017-01-26T13:13:06+00:00 January 25th, 2017|Latest News|0 Comments

Delivering a 250,000 strong petition

Today was the day we joined Fiona Paddon and Scott Bramley, Edward's parents, to deliver the 250,000 strong www.change.org/GBS petition to Jeremy Hunt MP (Secretary of State for Health), Prof Dame Sally Davies (Chief Medical Officer for England) and Dr Duncan Selbie (Chief Executive, Public Health England). The petition delivery was supported on the day by MPs Matthew Pennycook (Fiona & Scott's MP), Sir Nicholas Soames (our MP), Sir Peter Bottomley, Will Quince and Mims Davies with a number of apologies due to the timing from MPs travelling from further-flung parts of the UK. There was a pre-meeting, hosted by Sir Nicholas Soames MP and Matthew Pennycook MP, and Fiona spoke incredibly movingly, describing how she had known nothing about [...]

By | 2017-02-01T20:17:29+00:00 January 23rd, 2017|Latest News|0 Comments

Have your say on group B Strep screening – consultation closes 25 January 2017

Have your say on group B Strep screening - consultation closes 25 January 2017 We are very disappointed with the recommendations of the report commissioned by the UK National Screening Committee (UK NSC) against antenatal group B Strep screening and disagree with many of the findings and conclusions. The UK NSC looked at selected evidence published since 2012 the report they commissioned is recommending against introducing a screening programme. We strongly disagree with this - evidence shows that screening can both save lives and reduce the risk of long-term disability by preventing devastating GBS infections. Our expert Medical Advisory Panel is carefully examining the report and we will be submitting a detailed response. We disagree with a significant number [...]

By | 2017-01-26T13:22:21+00:00 January 16th, 2017|Latest News|0 Comments