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“Why doesn’t Group B Strep Support pay for ECM tests?”

We are sometimes asked if we provide grants towards part or all of the cost of the private enriched culture medium (ECM) test for group B Strep carriage. This isn't something we do, or are currently planning to do. We thought we'd share how we reached our current position. It’s something we have discussed since the charity’s founding in 1996. The Board of Trustees, along with the charity's Chief Executive and staff, have all had the opportunity to share their views on the issue. Our concerns about using the charity's funds to pay for tests can be broken down into three main areas. Improving care for everyone We believe that as a routine part of antenatal care in the NHS, all pregnant women should be informed about [...]

By | 2016-10-24T19:29:34+00:00 October 14th, 2016|2016, Blog, Latest News|0 Comments

The More You Know…

It's all about informed choice - get the facts & decide what's best for you & your baby Engagement on our social media pages is at an all-time high. We have noticed that there was a lot of misinformation being circulated. Misinformation can lead to the kind of tragic outcomes we’re desperately trying to prevent. We want every pregnant woman be given accurate information about group B Strep. This is clearly not happening and begets lack of accurate information being given about testing. There are officially three different tests for GBS carriage and it is crucial to know which is being offered. There is the Standard Direct Plating method which is the conventional NHS test, the ECM (Enriched Culture Medium method) recognised as the ‘gold [...]

By | 2017-01-11T18:39:39+00:00 October 4th, 2016|2016, Blog|0 Comments

Joining a Maternity Services Liaison Committee (MSLC) by Guest Kim Poulton

Group B Strep is the UK’s most common cause of life-threatening infection in newborn babies, and the charity Group B Strep Support is very close to my heart. I found out I carried group B Strep after my daughter was sadly stillborn at full term plus 9 days. My precious daughter, Faith, was stillborn on 23rd October 2015. Within an hour of arriving at the hospital excited to have our fourth and last child to complete our family, I was holding my dead baby in my arms. My pregnancy with Faith had been normal and healthy, and I have three perfectly healthy children. Tests showed I was heavily colonised with group B Strep, as was my urine, placenta, and Faith’s swabs. [...]

By | 2017-01-11T18:39:41+00:00 July 25th, 2016|2016, Latest News|0 Comments

Success in a Group B Strep Legal Claim

Guest blog from Stuart Bramley, Partner of Tozers www.tozers.co.uk Tozers LLP were recently successful in obtaining an admission of negligence in a complex claim where Alyssa Richardson developed the infection Group B Streptococcus (GBS) in the hours after her birth in 2013. Stuart writes: "In labour, Alyssa’s mother Rachel was found to have two risk factors – a high temperature; and her waters breaking more than 12 hours before delivery. When combined these factors gave a GBS risk of 12 times that of most expectant mothers. When Rachel arrived at her local hospital in labour she had a swab taken and was told this was for MRSA. When Alyssa was 12 hours old (36 hours after the swabs were taken) a [...]

By | 2017-01-11T18:39:41+00:00 July 19th, 2016|2016, Latest News|0 Comments

What Group B Strep meant for me as a soon to be father

Guest blogger - Han-Son, dad blogger at DaddiLife.com Follow the journey at https://www.facebook.com/daddilife/   The First Check Up It's April 2014, and Jess and I are just about over the ‘shock phase’ of being pregnant in time for our first ever 12 week check up. I hear this heart beat that’s growing louder and louder. My internal voice is saying ‘WOW’ Jess is growing an actual little human inside her!’ This is serial, incredible, and yes a little scary too. Bloods are taken, and we get some news soon after that Jess may have Group Strep B. ‘Strep what?’ I had never heard of it before - was it good? bad? It can’t be that bad if I’ve never heard [...]

By | 2017-01-11T18:39:43+00:00 July 4th, 2016|2016, Latest News|0 Comments

Guest Blog: Planning a Fundraising Event by Jason Osborne

Planning a charity event doesn’t have to be difficult – GBSS supporter Jason Osborne has done it and will tell you how… First Steps You’ve decided to help those involved with the Group B Strep Support charity by raising much needed funds and awareness of the infection so it is highly likely that you or someone close to you has been deeply affected by Group B Strep . Type of Event The planning of your event will very much be dictated by the type and size of the event that you have chosen to host.  All events have some things in common though including the need for careful advertisement and to be done in such a way where people will feel [...]

By | 2017-01-11T18:39:54+00:00 March 15th, 2016|2016, Blog|0 Comments

International Prenatal Infection Prevention Month

International Prenatal Infection Prevention Month Facts from Group B Strep Support and Kicks Count As February is International Prenatal Infection Prevention Month, we teamed up with KicksCount, a fellow charity we highly respect, to provide information aimed at educating and empowering mums to be. Let us first remember and review that group B Streptococcus (GBS) is a natural and normal bacterium that colonises 20-30% of all adults (men and women) without symptoms or side-effects. It is usually found in the intestines as part of your normal gut flora. It can also found in the vagina living as a ‘commensal’ – an organism which lives in or on another without causing any harm. It is not a sexually transmitted disease and simply [...]

By | 2017-01-11T18:40:01+00:00 February 1st, 2016|2016, Blog, Latest News|0 Comments

Guest Blog: My role as a GBSS Volunteer Ambassador

"I am honoured to be a Volunteer Ambassador for GBSS. In my spare time I do what I can to support the charity to raise funds and awareness. I first became aware of Group B Strep Support after my daughter had spent her first few weeks in Neonatal Intensive Care with overwhelming sepsis caused by group B Strep. Thankfully, she recovered but I had lots of questions and once Emily was home and healthy I took to Google to try and find out more about what had made her so poorly. The GBSS website proved to be the most informative place to gather all the information I needed. It gave me the facts and figures, it provided answers as to [...]

By | 2017-01-11T18:40:01+00:00 December 11th, 2015|2015, Blog|0 Comments

“Insanity is doing the same thing over and over again and expecting a different result.”

So Albert Einstein is reported to have said. He wasn’t talking about the UK’s prevention of group B Strep infection in newborn babies but he could have. In the 12 years since the risk-based prevention strategy was introduced, no fall has been reported in the rate of these infections … yet we persist with the same strategy. Rates of early-onset (0-6 days) group B Strep infection increased from 0.28 cases per 1,000 live births to 0.41 between 2000 and 2010[i]. Rates of late-onset (7–90 days) group B Strep infection increased between 1991 and 2010 from 0.11 to 0.29 per 1,000 live births. This is particularly disappointing since experts expected the 2003 risk-based prevention guidelines to reduce early-onset group B Strep [...]

By | 2015-11-17T14:57:04+00:00 November 17th, 2015|2015, Blog|0 Comments

Guest Blog: Research involving recruitment of large numbers of patients is a labour of love!

Written by Dr Karen Morton, Consultant gynaecologist and obstetrician at the Royal Surrey County Hospital, Guildford, and Founder of Dr Morton’s – the medical helpline© It is exciting that the work undertaken to look at which subtypes of group B Streptococcus were prevalent in different geographical areas, with the possible hope of producing a vaccine against group B Strep, is going to be presented at the conference in November. It will be a pleasure to hear Prof Androulla Efstratiou speak and update so many interested parties on the results of the DEVANI study; a huge, ambitious, multicentre, international study, which I participated in between June 2009 and March 2010. Goodness, it seems such a long time ago now! I still [...]

By | 2017-01-11T18:40:02+00:00 October 14th, 2015|2015, Blog, Latest News|0 Comments