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ITV’s This Morning

Fiona Paddon appeared on ITV's This Morning today to talk about the loss of her baby, Edward, as a result of group B Strep infection and her campaign to prevent the same happening to other Mums. She talked about her petition and spoke very movingly about what had happened, and her heartbreak. Philip Schofield and Holly Willoughby were clearly shocked that not only are pregnant women not told about group B Strep, but also that such a simple test for group B Strep carriage - the ECM test - is not available on the NHS. Dr Chris Steele provided all the key information, including how other countries routinely test pregnant women. There was just time for Dr Chris to explain that [...]

By | 2017-01-26T13:13:06+00:00 January 25th, 2017|Latest News|0 Comments

Delivering a 250,000 strong petition

Today was the day we joined Fiona Paddon and Scott Bramley, Edward's parents, to deliver the 250,000 strong petition to Jeremy Hunt MP (Secretary of State for Health), Prof Dame Sally Davies (Chief Medical Officer for England) and Dr Duncan Selbie (Chief Executive, Public Health England). The petition delivery was supported on the day by MPs Matthew Pennycook (Fiona & Scott's MP), Sir Nicholas Soames (our MP), Sir Peter Bottomley, Will Quince and Mims Davies with a number of apologies due to the timing from MPs travelling from further-flung parts of the UK. There was a pre-meeting, hosted by Sir Nicholas Soames MP and Matthew Pennycook MP, and Fiona spoke incredibly movingly, describing how she had known nothing about [...]

By | 2017-02-01T20:17:29+00:00 January 23rd, 2017|Latest News|0 Comments

Have your say on group B Strep screening – consultation closes 25 January 2017

Have your say on group B Strep screening - consultation closes 25 January 2017 We are very disappointed with the recommendations of the report commissioned by the UK National Screening Committee (UK NSC) against antenatal group B Strep screening and disagree with many of the findings and conclusions. The UK NSC looked at selected evidence published since 2012 the report they commissioned is recommending against introducing a screening programme. We strongly disagree with this - evidence shows that screening can both save lives and reduce the risk of long-term disability by preventing devastating GBS infections. Our expert Medical Advisory Panel is carefully examining the report and we will be submitting a detailed response. We disagree with a significant number [...]

By | 2017-01-26T13:22:21+00:00 January 16th, 2017|Latest News|0 Comments

Andrew Harding’s PCT Hike: Final Post

I had planned to walk what is known as 'The Pacific Crest Trail' - PCT - some 2,650 miles northbound from Mexico to the Canadian border. A long, long, walk, about 5 months to do, and nearly 7 months of planning. Jane and I had spoken about GBSS, and I had determined to take this ‘stroll in the wilderness’ to raise money for the charity, and simultaneously raise awareness through fund raising events and presentations. Many kind friends and colleagues stepped up to this and the donations page was created. The fund raisers also brought a whole new awareness to my local community. In late April of this year, I set off. The start of the trail is at [...]

By | 2017-01-11T18:39:28+00:00 December 16th, 2016|Latest News, Pacific Crest Trail|0 Comments

Rates of Group B Strep Infection in Babies Rise Again

The rate of group B Strep infections in babies aged 0-6 days rose again in 2015. The rate of 'early-onset' group B Strep infections is now 19% higher than it was when the UK first introduced a prevention strategy against these infections developing in newborn babies. The rise numbers of babies diagnosed with group B Strep infection are shocking - there were 140 more sick babies reported in 2015 than in 2003. 86 more babies were reported with early-onset group B Strep infection, and 54 more babies with late-onset group B Strep infection. The graph above (presenting voluntarily reported data for England, Wales & Northern Ireland) shows that, after initially falling, the rate of early-onset group B Strep had risen to 0.44 cases [...]

By | 2017-01-11T18:39:28+00:00 November 28th, 2016|Latest News|0 Comments

UK National Screening Committee – GBS review

The UK National Screening Committee (NSC) has published the report they commissioned which has recommended against introducing a UK screening programme for group B Strep. The NSC revealed this in their review of antenatal screening for group B Strep, which today opened for public consultation. You can download their 'expert review for Group B Streptococcus' here (PDF document, 3.86MB). This is not a final decision, as their review is now subject to a public consultation, and you can have your say on the review and its conclusion. The public consultation runs until Wednesday 25 January 2017. Please send your comments to them by e-mail ensuring you use this feedback form by Wednesday 25 January 2017. Be aware that all responses will be published on the website after [...]

By | 2017-01-11T18:39:29+00:00 October 28th, 2016|Latest News|0 Comments

Pfizer Awarded Grant to Evaluate Vaccine to Protect Newborns Against Group B Streptococcus Infection

We are delighted that Pfizer has been awarded by the Bill & Melinda Gates Foundation for a Phase 1/2 clinical trial to evaluate a group B streptococcus vaccine. The vaccine is designed to protect newborn babies via maternal immunisation. The need for a vaccine that could protect pregnant women and their newborn babies against GBS infection is urgent, particularly in developing countries and those where screening and use of antibiotics in labour is not routine. A vaccine against group B Strep in newborn babies would enable the mother to pass protective antibodies to her unborn child late in pregnancy, to prevent not only GBS infections developing in newborns, but also the less common GBS infections developing later in pregnancy or after the first week of [...]

By | 2016-10-24T19:42:36+00:00 October 19th, 2016|Latest News|0 Comments

The “Our Chance” campaign

Today the "Our Chance" campaign was launched to empower parents with the knowledge and confidence to maximise their chances of healthy outcomes for themselves and their babies. There are 25 short films available, featuring real-life stories from parents, healthcare professionals and Our Chance supporter Abbey Clancy. We're delighted to have contributed to this important campaign, developed by the Department of Health and charities Sands, the stillbirth & neonatal death charity and Best Beginnings, and in particular on the film about infection, which includes information about group B Strep -  watch below: Please like & share.

By | 2017-01-11T18:39:29+00:00 October 17th, 2016|Latest News|0 Comments

Our Patron Sir Nicholas Soames speaks out in Parliament on group B Strep during Baby Loss Awareness Week 2016

Sir Nicholas Soames MP spoke movingly and powerfully in the Baby Loss Debate held in Parliament on 13 October 2016. It was parliament at its best - MP after MP told heart-breaking stories of baby loss. Some shared their own stories, a number for the first time in the House. Others shared their constituents' stories. Throughout, the emotion was palpable, as was the determination to do better, both for caring for the bereaved families, and for preventing avoidable baby loss. The Minister for Health, Philip Dunne MP, responded on behalf of the Government, promising new initiatives to ensure that care for bereaved families will be improved. Members of the All Party Parliamentary Group on Baby Loss will be watching ... "I [...]

By | 2017-01-11T18:39:29+00:00 October 13th, 2016|Latest News|0 Comments

Jess Swindell

Jess Swindell had a great time at the Big Fun Run in Derby on Saturday, 20 August 2016. She writes, "Just raising awareness of GBSS felt like a victory to me. The money raised is a bonus. I had people reading my GBSS t-shirt and I sent the link out to colleagues so they could read up on facts. I also spread the word on social media. I am one of the lucky ones. My GBS was discovered at 35 weeks and I was retested at 39 weeks to still be positive. I was desperate for a water birth but was told that I couldn't because I would need IV antibiotics. In fact, I got that result the day before having [...]

By | 2016-08-23T13:57:12+00:00 August 23rd, 2016|Fundraisers' Events|0 Comments